Research.

We often end up in Facebook groups and CFS forums for this one, because if there’s one thing the invisible illness community isn’t short on, it’s anecdotes about what helped someone else. Experimentation Nation aims to quieten this noise by releasing community trial results on our Facebook and Discord. Trials started in January 2022, and you can join any time.

For people with invisible illness, figuring out what therapies might help us often doesn’t start with our doctors, but it should end up there. Go to your doctor armed with research, be a collaborator, and ask for what you think you need.